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 AveD
Cadet 2
Joined: May 07, 2010
Member#: 785
Posts: 5
   
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 Posted:
Sat Mar 12, 2016 12:39 pm Post subject: PeteC's health updates |
 
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Our good friend and EFM member PeteC had extensive amputation surgery of his right leg on February 18th. This post will serve as a place to update his progress whenever news from him arrives. I'll copy & paste from those communications so we have his writings & voice.
Feb. 25: 'The doctors are caravaning in and the consensus is that I am progressing in the right direction. They have removed two of the three drains. Progress. This is a definite sign of recovery for that phase of the surgery. The pathology on margins were all clear and the best that could be hoped for.'
and then short follow up: 'They just took the last tube out of my arm. We're moving to the rehabilitation section.'
Feb 26th: 'I have really lucked out! IT TURNS OUT that was a woman, who I helped with her dog out on the streets works here and gotten two nurses and a private room!'
March 1st: 'Had to go back in. Internal bleeding. Just out. Going through the elongated recovery process again. It will be many weeks yet.'
March 2: 'I am taking it slow and steady. Had a good rest in my bed of choice: here. They finally swapped it out for me at ICU. I did get some needed sleep and feel like I can pick up the cross again. Thanks for contacting me, again. Feel free to update everyone. '
update from Pete, March 7th:
'I can tell you that in this cycle of ICU, Floor, Rehab: I am at the end of another Floor stay which has had as its highlight: two unpleasant catheter-related events. They could have been avoided if the Urologists were all on the same page and considering of all the data. It basically ended up with a lot of retained fluid and to a level high enough to very uncomfortable. Let's hope they learned their lesson as of last night.
As for realistic recovery expectations, I cannot see any prediction and especially with my dermal sensitivity at 6.25-12.5% on my remaining leg so far. A long road is THE ROAD I am on.
Sometime this week: I suspect I will be moved to Rehab again. We'll try it, again.
Miss you guys terribly.'
update from Pete, March 11:
'This week has been one of pain thresholds, medications and the searching for a stable regimen that can carry me through rehab. No success, yet. We are still on the hospital floor. The wounds are healing. The good leg is coming back but ever so slowly. Feeling in it is at around 12%. It is not at a level that is functional, though. However, I do PT despite it to keep trying to get stronger.
I have weights that I use to also develop upper body strength as this is where my new source is. I hope to find my way to rehab soon and to those routines and techniques that will see me out of the hospital and home. No idea when that might happen, though. Not yet.
Very best to you all.
P' |
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AveD
Cadet 2
Joined: May 07, 2010
Member#: 785
Posts: 5
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Posted:
Sat Mar 19, 2016 8:39 am Post subject: |
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update from Pete, March 19:
I am in Inpatient Rehabilitation. This is the last stop before getting released and being discharged. To be here, I needed to get off all IV pain medicine. Now, I was on such for a good while leading up to this, with my phantom pain interfering. The Pain Docs did come with a combo that could that get get me through BUT it was very constipating and that was NO fun. Even now, ,I cringe thinking about it. It was a challenge but Pain Doc and Neurology came.up with an idea for me called a Nerve Block.
In this procedure, sympathtic nerve endings would be targeted having to do with the amputated leg and with these chemicals, the hope was for the pain to be changed or removed. They WERE changed (muted) and this has allowed us to lower the dosage of the pain meds and that helps with that other issue etc.
So, here, we are at the inroads of rehab and let me tell you: it's tough. I am at it but it's tough. Simple things are so hard. Basic things, so tough. That is where I am but I am at it. I am not giving up.
I will be in touch.
P |
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debby
Cadet 1
Joined: Mar 25, 2018
Member#: 7696
Posts: 1
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Posted:
Sun Mar 25, 2018 2:20 pm Post subject: |
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Have you tried supplements? Im currently trying out Synephrine as im often tired and disstressed for no ovious reason. Synephrine really helps me to avoid that energy lacks and it is not really expensive if you buy it online: https://liftmode.com/energizing/synephrine.html |
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